tag:blogger.com,1999:blog-1835871859715977979.post7156267701790203790..comments2024-03-29T01:19:08.710-07:00Comments on Our Cora Bean: Just One of Those DaysLeahhttp://www.blogger.com/profile/08985688905432556253noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-1835871859715977979.post-19667559637253664722012-09-19T13:09:21.888-07:002012-09-19T13:09:21.888-07:00I have been feeling this way lately. I wonder if ...I have been feeling this way lately. I wonder if as our kids get older (mine is 2) and the developmental gap widens it gets harder.<br /><br />Thank you for putting your thoughts and feelings into words. It is nice to relate to someone else and still feel normal. :)cinnamonnoreply@blogger.comtag:blogger.com,1999:blog-1835871859715977979.post-73459378682500950152012-09-17T11:48:27.116-07:002012-09-17T11:48:27.116-07:00Hugs! I have a lot of the same feelings, but when...Hugs! I have a lot of the same feelings, but when it comes to different things. Kennedy is doing so well when it comes to motor skills, but we are really struggling with some of the speech stuff. Okay, a lot of the speech stuff. It just goes to show how completely different kids are and that one day they will both be running around talking up a storm and neither of us will be focusing on these early days. Jenniferhttps://www.blogger.com/profile/02869480806310657162noreply@blogger.comtag:blogger.com,1999:blog-1835871859715977979.post-83973046010266592622012-09-14T13:24:06.801-07:002012-09-14T13:24:06.801-07:00Hugs hugs hugs, mama! These feelings are normal. ...Hugs hugs hugs, mama! These feelings are normal. We say not to compare and then we do. Sometimes, I think it is harder when we compare children with Ds to other children with Ds. I can sit there and look at Ellie playing around a typical child and say "well of course she isn't doing that yet. She is delayed because of Ds". Then I see her with another, YOUNGER child with Ds doing something that Ellie isn't even close to doing. It stings. All of our children have strengths and challenges. Cora's is gross motor. Ellie's is social and language. Hang in there, mama!Anna Theurerhttps://www.blogger.com/profile/06937391910402532608noreply@blogger.comtag:blogger.com,1999:blog-1835871859715977979.post-57910791199320958302012-09-14T12:41:39.074-07:002012-09-14T12:41:39.074-07:00Wow this is good...so well said and explained and ...Wow this is good...so well said and explained and point on with my fleeting like emotions of this feeling...I do think it does get easier in a way and less in a way and shorter in a way...but it still stings and aches as though it is fresh...I hate when I compare Maddie I feel almost guilty...but I just want for her in a strange panic way almost...that because it takes her such a long time to master a milestone i must protect her and me from hurt feelings...Cora rocks the pigs! SmilesAnonymoushttps://www.blogger.com/profile/06551567304485458524noreply@blogger.comtag:blogger.com,1999:blog-1835871859715977979.post-72549835303354882132012-09-14T10:42:43.387-07:002012-09-14T10:42:43.387-07:00Honestly I think it does get better. Last summer I...Honestly I think it does get better. Last summer I wasn't sure Lucas would ever talk. His therapist asked me, "What are your fears, that he will be non-verbal?" And at that moment I knew if she said it, it was possible and it was my fear. But a year later, Lucas is saying words, understanding more, acting his age. It's been amazing. Our kids start off a little slower but they do catch up and Cora will walk and talk and do amazing things. As for the other moms, trust me they would be staring and judging even if Cora didn't have Ds. It's human nature I'm afraid. I've been there though and it's so hard to deal with and I never think fast enough to say the right thing. I'm sure there are people who pity us but they don't know how wonderful our life is and how it's been better because of our little ones with a little extra.Erinhttps://www.blogger.com/profile/09879135187722664722noreply@blogger.comtag:blogger.com,1999:blog-1835871859715977979.post-53370434136111960492012-09-14T09:37:14.175-07:002012-09-14T09:37:14.175-07:00Leah, I have a 9 month old son with Ds, and your b...Leah, I have a 9 month old son with Ds, and your blog is what helped me through his AV canal repair. Thank you.<br /><br /> As for the mothers who look away, they probably don't know what to say and are confronting their own discomfort with different. They haven't grown up enough (I mean that in the kindest way) to be comfortable with others not. exactly. like. them. The mothers who commented, well they've grown up and I'm glad they noticed Cora and her cuteness. <br /><br />Before I had my son, my family and I wouldn't have given much thought to someone who had Ds in the same room with us, other than "oh there is another person here." But now that we have our son, we actually watch a little more just because we are more curious now. Kind of like when you buy a blue van you see blue vans everywhere. Not really but you notice more now. What I'm trying to say is that most likely people are noticing Cora as a toddler and not tallying up in their heads where Cora is developmentally. I know I didn't when I saw other little children who I could see had Ds or some other difference. But then there were lots of other children whose challenges were not seen, but were in behavior or other things that could not be seen. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1835871859715977979.post-57585354184769890302012-09-14T04:36:41.395-07:002012-09-14T04:36:41.395-07:00Oh Leah! I'm guessing that Ben's first st...Oh Leah! I'm guessing that Ben's first steps played a part in your mood. I'm sorry. Remember that each of us has our own strengths and weaknesses. Ben has no words and no signs. But he does have an older brother that he desperately wants to keep up with. And that older brother was early to walk (10 months) and late to talk (2.5 years). It seems like Ben might be on the same path. Laurahttps://www.blogger.com/profile/00315418096327968090noreply@blogger.comtag:blogger.com,1999:blog-1835871859715977979.post-17604650643678152322012-09-13T23:21:13.668-07:002012-09-13T23:21:13.668-07:00Oh my goodness this post brought back how I used t...Oh my goodness this post brought back how I used to feel, but it does get better! i remember those moments, comparing with other NTs (neurotypicals), the pain because your child is not doing those things and then the guilt because you compare, its a vicious circle...I dont know when it happened to me, but I hit a place of aceptance at some stage, and stopped comparing (my girl is now 9). Doing some therapy helped alot (with a psychologist) so I really recommend that. <br />We are now doing it again, with our adopted son (2 yo and he has DS) and you now what, I am totally enjoying him and I never compare, he is not walking, probably wont be until 3yo, and I dont care! Its such a release this time around, I am not going through the pain I went through with my daughter. I smile and laugh alot more this time, and actually have guilt around how I was so emotional with my daughter! Can't win, can we. LOL.<br />Hang in there, its obvious you are a great mother, just be kind to yourself, its not easy...<br />ahoy.jennihttps://www.blogger.com/profile/00362958130482625558noreply@blogger.comtag:blogger.com,1999:blog-1835871859715977979.post-47910959186311717542012-09-13T21:28:12.722-07:002012-09-13T21:28:12.722-07:00This comment has been removed by the author.JChttps://www.blogger.com/profile/16040699928110444013noreply@blogger.comtag:blogger.com,1999:blog-1835871859715977979.post-76139278778649680142012-09-13T21:27:52.664-07:002012-09-13T21:27:52.664-07:00Leah, I could have written this myself, I totally ...Leah, I could have written this myself, I totally get it. This post describes perfectly how I feel at times. Hope you don't mind if I share it on FB :)JChttps://www.blogger.com/profile/16040699928110444013noreply@blogger.comtag:blogger.com,1999:blog-1835871859715977979.post-39583855850499153022012-09-13T19:36:50.044-07:002012-09-13T19:36:50.044-07:00Hi Leah,
I stumbled upon your blog from another p...Hi Leah,<br /><br />I stumbled upon your blog from another person's blog (isn't that often how it goes?!). My son is 3 and has Ds (he also had an AV canal repair). This post really spoke to me. I've been there myself (and cried a bit at a story time for babies at the library a couple of years ago too!) and I would be lying if I said it's gets easier. Sometimes it just hurts to see other kids doing things that you wish your little could do. Just know that you are not alone--there are lots of us out here! Cora is one beautiful little girl!Anonymoushttps://www.blogger.com/profile/17913754866057778005noreply@blogger.comtag:blogger.com,1999:blog-1835871859715977979.post-70999375422412664592012-09-13T18:34:13.330-07:002012-09-13T18:34:13.330-07:00I would love to give you a hug because I felt like...I would love to give you a hug because I felt like that last night. We had such a great therapy session earlier that day and had our eval on Monday. I was very proud of my little girl. Then we were at soccer practice and a friend had her daughter there. She was running around and drinking out of a water bottle by herself. My husband said bye to her and she said bye right back crystal clear. That is when I fought tears....she is 3 or 4 months younger than Hailey. My pride was gone and I was sad. When we came home later, my husband commented on how high maintenance the little girl was and how out of control she was compared to how well behaved Hailey was. lovemy3https://www.blogger.com/profile/17434145151589494680noreply@blogger.com