I think about Down syndrome a lot. I hear some of my friends with kids with Cora's age talk about how they don't really think about it much anymore, that they just see their child, rather than Ds. And then I wonder why I think of it so much. There really isn't a day that goes by that I don't think about it a little, I am sure.
Whether I'm in a bad mood and find myself watching the passing teenagers faces for some type of reaction as Cora waves at them from her stroller, or whether I follow her closely as she butt-scoots around the playground, never letting go of her hand as she goes down the slide, as the other kids her age run circles around everyone. It seems like Ds creeps into the back of my mind often, still.
Much of the time my thoughts aren't negative, but they're still there. I love my Down syndrome community, both her in real life and online, but sometimes it can be overwhelming always reading about milestones, frustrations and joys. Sometimes I just need to take a step back.
Hmmm... perhaps I'm feeling a little melancholy today. I don't know why. Although breakfast has been ready for some time, I am letting my little strong-willed and loud-voiced girlie watch Yo Gabba Gabba for a few minutes before I brave mealtime, once again. Sometimes I feel like just handing her the Veggie Stix and being done with it.
Sometimes it's OK to be in a mood.
But then I go looking through the photos from last weekend spent with Nick's family in Spokane for my sister-in-law's baby shower. What a lovely time. And what lovely people that love Cora so much. It's nice to be around people who can love Cora so purely and easily and don't share my constant concerns and questions. She sure is loveable. Even with her sass.
So here's a glimpse for the rest of you, of my beautiful girl loving her weekend away. Loving her family.
|In case you wondered where Cora gets her whiter than white skin.|
|On her feet. Even though she can stand alone a little, she still thinks she needs total support.|
|Loves. Can't wait to meet Cora's sweet little cousin in a couple short months.|
|Three generations. Lucky girlie!|
|Signing "cheese." Because isn't that the correct thing to do when someone takes your picture?|
|Being outside with Daddy is the best. What a smile!|
|This girl loves her Grandma Pam! The feeling is mutual!|
|Kisses from Grandpa.|
|The closest to a decent picture with nobody closing their eyes.|